Dave had to take breakthrough meds twice today. He had overdone himself last Saturday by taking the Hoskins and Fox family crabbing, waking up at 3:30 am. Everybody had a good time, excited being it's their first time. Everybody got yelled at ... me the first one, tried to snooze when the alarm went off, pushing the off button instead of the snooze. Marie, his cousin, recieved most of his wrath because she was all over him, trying to hold him whenever he's up(that was a big break for me). He gets mad because he thinks that I treat him like a child, pushing the wheelchair around him, making him sit down, use his O2, etc. He was so excited spending time with all of us, showing everybody the art of crabbing. We stopped at a Mexican restaurant for lunch, he had some carne asada, chips with guacamole and re-fried beans. He looked drunk that the waiter was a bit concern.
We finally met his Hospice nurse today. She likes fishing and crabbing so Dave has a new friend. We are going to see his oncologist tomorrow and I'm not really looking forward to it. He's a new fellow whom we only seen once. The GI doctor at the ward who followed Dave's case the whole time we were at the hospital tried to get us an appt. with the Dr. Rahman (fellow at the oncology ward) but his clinic days are Wednesdays.
I am so glad to finally be home even if I sleep on the couch besides Dave's bed. Our bedroom is now a guest room and Melissa started hanging out there since granny has her room. I got tired of eating healthy, "hospital", food. Dave doesn't eat so I just pick what I want on the list.
As I mentioned on my previous blog, Dave went to the pain management clinic. They talked about a pain procedure that we couldn't resist, since Dave was in so much pain and we were at the ER the night before. We agreed, excited that it might be it, taking all the pain away. The procedure is called Celiac Plexus Nerve Block. It was a very painful procedure, he had to lie down on his belly during the procedure and another hour after. He thinks it works saying that he doesn't feel pain from his liver anymore.
Thank you so much for the love, prayers and support from my church, Broadneck Baptist Church, sending food for the whole family, my daycare parents; Bill and Sherryl Barton and Bill and Maggie Edwards, Diana's mom, Beth Balick who went out of her way finding a Pilipino Restaurant, my friends Ruth and Frank Arp. Ruth did the childcare duty for the babies while Angie and Barbie was at the hospital with me and Dave. She took the big kids to Hershey Park last Saturday while the adults were crabbing. Thank you to Aileen and Joann for always being there.
I have to join Dave in watching Poker for now. Do some more laundry and then off to bed hoping that Dave will have a good night sleep.
Please keep sending your prayers our way for peace and comfort.
Love,
edith